Hi my name is Shea Freeman. I was born with Crouzon's syndrome, cleft lip and pallete, and another craniofacial disease. When I was 17 I had the halo attached to my head during the summer before my senior year. It was a very rough process and I had to wear it for 11 weeks (the whole summer). They broke my upper jaw into three and repaired it to give me an under-bite and pull mhy face forward. I'll admit, it caused a strain on me mentally for the first 2 weeks, but after a while I continued my summer without any problems. I was fortunate enough to have a brilliant doctor by the name of Mutaz Habal, who has been a mentor to me and has performed over 50-60 surgeries on me since I was 2 weeks old. I am 20 years old now and I can say that the apparatus has definitely improved my smile along with the structure of my face.

Although it didn't completely change my look, it doesn't really matter to me because I'm just as normal as the next person and now i feel that way. I never had a problem talking to people with it on. In fact, I met a gorgeous girl while wearing it and we dated for 2 years. I was unaware of the website and when I came across this I felt like I had to say something. Most people go their whole lives without telling the world how they feel and for kids with Crouzon's it can be very difficult to do that. Sometimes you can feel like you don't fit in or you're not normal or you don't even matter to other people, but I'm very proud of who I am and I wouldn't change a thing about me if I didn't have to. People with Craniofacial syndromes are not mistakes, or mentally handicapped, or sad stories. God made us this way because he wants us to get past it because he made us stronger than normal people. I don't wanna sit here and try to be a hero, because I'm not. I'm a regular guy who just so happens to have 3 syndromes that do not correlate with each other (it's been said to be a medical miracle that i lived), but I do wanna change the way people look at us and my only advice to parents or siblings or friends of someone that has these syndromes is simple: Just let them be themselves and don't shelter them. Remember, what doesn't break you, makes you. And I know in my heart that every kid with Crouzon's knows that and they all have the ability to do something extraordinary. All we gotta do is spread the word and educate people on it. Well I know this has been a rather long message, but I hope people read this and tell others about it. Thanks and God Bless