The Sears family runs this unofficial online
headquarters for craniofacial families. Their
daughter, Teeter, has Apert Syndrome and they've
created this site to provide community and support
to all of "Teeter's Friends." Check it out!
This is the organization
aims to help craniofacial families with financial,
medical, other needs. Every year, a family retreat is
held by CCA and sponsored largely by Cher, who also
helps CCA to publicize craniofacial needs. They also
provide a monthly newsletter.
FACES provides financial
aid for transportation/housing for families during
surgeries and medical things. They also provide support
and publicity for craniofacial needs. You can sign up
for their free newsletter on the "Contact FACES" page.
USA AmeriFace USA (formerly AboutFace USA) provides support and
education to families affected by facial abnormalities.
Cleft Advocate is a program of
Ameriface and provides
information and support for people and their families
with cleft lip and/or palate.
Let's Face It! Craniofacial support site based in the University of
Michigan's School of Dentistry